Patients with spinal dysraphisms (myelomeningocele, lipomeningocele, spina bifida occulta, anchored marrow), patients with malformative pathology of the urinary system and with pathology of urinary and fecal continence of both a functional and neurogenic nature are followed at the Unit of Spina Bifida and Congenital Uropathies.
The management of the patient with neural tube closure defect starts early, during pregnancy through multidisciplinary prenatal counseling with the gynecologist and neurosurgeon and from birth, following their development and implementing a careful prevention program for related complications that may arise.
A multidisciplinary team formed by the Pediatric Neurosurgeon, Pediatric Surgeon, Ophthalmologist, Physiatrist, Orthopedist, Child Neuropsychiatrist, Pediatric Cardiologist, Gynecologist, Psychologist, Physiotherapist and Pelvic Floor Therapist, guarantee the overall care of the patient according to a careful follow up program during the lights in the Day Hospital or when necessary in hospitalization.
The Spina Bifida Day Hospital was recognized as a national and reference center of excellence by the Lazio region in 2007.
The services provided at the Day Hospital are:
A pelvic floor rehabilitation program is also carried out:
In particular, training programs in bladder self-catheterization, training in trans-colic washing, and home management of pressure sores are carried out for patients with Spina Bifida. Specialized nursing staff implements an information and prevention program of secondary effects related to the disease.
A detailed report of the tests performed and the follow-up program is drawn up for each patient, both in day hospital and in hospitalization, in order to better ensure the organization of appointments and consultations to optimize the objectives of the treatment.
In addition, since the Spina Bifida Center is located within a university hospital, that guarantees multidisciplinarity even for adults, an agreed transitional care program is carried out for the transition from pediatric to adult age.
